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Indiana Advocacy Resources
2:31am
BST on May 5, 2009
Advocacy Is NOT a Bad Word!
ADVOCACY RESOURCES
Subscribe to Newsletters (alphabetical):
• ARC of Indiana newsletter (general disability issues) (must pay $15 membership fee to receive by mail, but can read issues on the website): www.arcind.org.
• ASK newsletter (general disability issues) (quarterly printed newsletter, bimonthly electronic newsletter): go to www.aboutspecialkids.org/Info.aspx to sign up
• ATTAIN newsletter (assistive technology): go to www.attaininc.org/index.php and click on newsletter and e-newsletter on left side of page.
• Disability is Natural (there is a place to sign up to receive articles via email at the bottom of the page): www.disabilityisnatural.com/articles
• Family Center for Disability and Technology (assistive technology): www.fctd.info/resources/newsletters/index.php (email fctd@aed.org)
• Family to Family First Words newsletter (early intervention issues): available online at www.inf2f.org.
• Ideal Lives—60 second e-newsletters (can select topic): www.ideallives.com
• Indiana Governor’s Council for People with Disabilities (IGCPD) newsletter (general disability issues): email bwade@gpcpd.org or call 317-232-7770 to get your name on the mailing list. Newsletters can also be read online.
• Indiana Institute on Disability and Community (IIDC) newsletter (general disability issues): email foshaj@indiana.edu or visit www.iidc.indiana.edu/wel39.htm to read them on-line.
• INSOURCE newsletter (school-special education-related): email insource@insource.org to get your name on the mailing list or visit www.insource.org
• Mothers United for Moral Support (MUMS)—quarterly newsletter (in mail) and parent matching (particularly relevant for rare or undiagnosed disorders): www.netnet.net/mums/
• National Dissemination Center for Children with Disabilities (NICHCY)—click on sign-up for e-newsletter (complete survey to tailor emails to meet your needs): www.nichcy.org
o NICHCY has a great article on letter-writing:
http://www.nichcy.org/InformationResources/Documents/NICHCY%20PUBS/pa9.pdf
• Wrightslaw-Special Education Advocate e-newsletter: www.wrightslaw.com
Tip: If your child has a diagnosis, I recommend that you sign up for any state or national newsletters related to that diagnosis (doing a search on-line will usually locate these resources). Also, I recommend signing up for newsletters of local provider agencies (even if you don’t use them) and the local school system (even if your child doesn’t attend yet), so that you can begin to get a feel for what services and opportunities are available in your community.
Subscribe to Listservs (alphabetical):
Cedir listserv: Want to know when new books, resources and services become available at CeDIR? Future issues of CeDIR's newsletter and other tidbits of information are sent out via this listserv. This listserv is only for sending out information to those who have agreed to receive these messages from CeDIR; it will not be used as a discussion tool.
To subscribe: Send an email to "listserv@listserv.indiana.edu" with an empty subject line and the following text in the body of the message:
subscribe CEDIR-INFO-L [First Name] [Last Name]
Family to Family listserv: The Family to Family listserv is an excellent cross-disability resource for information about advocacy, upcoming events around the state, and more. Indiana parents can post questions on a variety of disability-related information and get information-filled responses quickly. To subscribe: Email inf2fparents-subscribe@yahoogroups.com
Family Voices listserv:
Family Voices of Indiana shares advocacy opportunities and updated information on issues that impact Indiana families of children with disabilities or special needs. This is a wonderful listserv for parents who want to be involved in advocacy on a community and/or legislative level. To subscribe: Email FVIndiana-subscribe@yahoogroups.com
My InSource listserv:
InSource allows parents to interact with one another online on a variety of topics related to disability and special education services at www.myinsource.org.
Find Trainings:
• ASK: www.aboutspecialkids.org/Training.aspx
• Early Childhood Meeting Place—click on events calendar: http://earlychildhoodmeetingplace.indiana.edu/
• INSOURCE: www.insource.org
Read Books
• CeDIR library offers a directory of all books and materials at www.iidc.indiana.edu/cedir/. There is also a blog which offers brief reviews of new disability-related books and materials at: http://cedir.blogspot.com/
• www.childrensdisabilities.info/books/index.html (school-related)
• www.familyvillage.wisc.edu/bookstore/list.html
• www.ideallives.com
• www.indianatransition.org/ (click on family resources button and then on book lists)
• www.nldontheweb.org/advocacy.htm (general advocacy and school-related)
• www.stonesoupgroup.org/alphasoup.htm: a list of acronyms commonly used by professionals when talking to parents of children with disabilities.
Some of Katie’s favorite books:
• Snow, K. Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities. Colorado: Braveheart Press, 2005.
• Wright, P. & Wright, P. From Emotions to Advocacy: The Special Education Survival Guide. Virginia: Harbor Law Press, 2004.
• Klein, S. & Schive, K. You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children with Disabilities. New York: Kensington Books, 2001.
ADVOCACY RESOURCES
Subscribe to Newsletters (alphabetical):
• ARC of Indiana newsletter (general disability issues) (must pay $15 membership fee to receive by mail, but can read issues on the website): www.arcind.org.
• ASK newsletter (general disability issues) (quarterly printed newsletter, bimonthly electronic newsletter): go to www.aboutspecialkids.org/Info.aspx to sign up
• ATTAIN newsletter (assistive technology): go to www.attaininc.org/index.php and click on newsletter and e-newsletter on left side of page.
• Disability is Natural (there is a place to sign up to receive articles via email at the bottom of the page): www.disabilityisnatural.com/articles
• Family Center for Disability and Technology (assistive technology): www.fctd.info/resources/newsletters/index.php (email fctd@aed.org)
• Family to Family First Words newsletter (early intervention issues): available online at www.inf2f.org.
• Ideal Lives—60 second e-newsletters (can select topic): www.ideallives.com
• Indiana Governor’s Council for People with Disabilities (IGCPD) newsletter (general disability issues): email bwade@gpcpd.org or call 317-232-7770 to get your name on the mailing list. Newsletters can also be read online.
• Indiana Institute on Disability and Community (IIDC) newsletter (general disability issues): email foshaj@indiana.edu or visit www.iidc.indiana.edu/wel39.htm to read them on-line.
• INSOURCE newsletter (school-special education-related): email insource@insource.org to get your name on the mailing list or visit www.insource.org
• Mothers United for Moral Support (MUMS)—quarterly newsletter (in mail) and parent matching (particularly relevant for rare or undiagnosed disorders): www.netnet.net/mums/
• National Dissemination Center for Children with Disabilities (NICHCY)—click on sign-up for e-newsletter (complete survey to tailor emails to meet your needs): www.nichcy.org
o NICHCY has a great article on letter-writing:
http://www.nichcy.org/InformationResources/Documents/NICHCY%20PUBS/pa9.pdf
• Wrightslaw-Special Education Advocate e-newsletter: www.wrightslaw.com
Tip: If your child has a diagnosis, I recommend that you sign up for any state or national newsletters related to that diagnosis (doing a search on-line will usually locate these resources). Also, I recommend signing up for newsletters of local provider agencies (even if you don’t use them) and the local school system (even if your child doesn’t attend yet), so that you can begin to get a feel for what services and opportunities are available in your community.
Subscribe to Listservs (alphabetical):
Cedir listserv: Want to know when new books, resources and services become available at CeDIR? Future issues of CeDIR's newsletter and other tidbits of information are sent out via this listserv. This listserv is only for sending out information to those who have agreed to receive these messages from CeDIR; it will not be used as a discussion tool.
To subscribe: Send an email to "listserv@listserv.indiana.edu" with an empty subject line and the following text in the body of the message:
subscribe CEDIR-INFO-L [First Name] [Last Name]
Family to Family listserv: The Family to Family listserv is an excellent cross-disability resource for information about advocacy, upcoming events around the state, and more. Indiana parents can post questions on a variety of disability-related information and get information-filled responses quickly. To subscribe: Email inf2fparents-subscribe@yahoogroups.com
Family Voices listserv:
Family Voices of Indiana shares advocacy opportunities and updated information on issues that impact Indiana families of children with disabilities or special needs. This is a wonderful listserv for parents who want to be involved in advocacy on a community and/or legislative level. To subscribe: Email FVIndiana-subscribe@yahoogroups.com
My InSource listserv:
InSource allows parents to interact with one another online on a variety of topics related to disability and special education services at www.myinsource.org.
Find Trainings:
• ASK: www.aboutspecialkids.org/Training.aspx
• Early Childhood Meeting Place—click on events calendar: http://earlychildhoodmeetingplace.indiana.edu/
• INSOURCE: www.insource.org
Read Books
• CeDIR library offers a directory of all books and materials at www.iidc.indiana.edu/cedir/. There is also a blog which offers brief reviews of new disability-related books and materials at: http://cedir.blogspot.com/
• www.childrensdisabilities.info/books/index.html (school-related)
• www.familyvillage.wisc.edu/bookstore/list.html
• www.ideallives.com
• www.indianatransition.org/ (click on family resources button and then on book lists)
• www.nldontheweb.org/advocacy.htm (general advocacy and school-related)
• www.stonesoupgroup.org/alphasoup.htm: a list of acronyms commonly used by professionals when talking to parents of children with disabilities.
Some of Katie’s favorite books:
• Snow, K. Disability is Natural: Revolutionary Common Sense for Raising Successful Children with Disabilities. Colorado: Braveheart Press, 2005.
• Wright, P. & Wright, P. From Emotions to Advocacy: The Special Education Survival Guide. Virginia: Harbor Law Press, 2004.
• Klein, S. & Schive, K. You Will Dream New Dreams: Inspiring Personal Stories by Parents of Children with Disabilities. New York: Kensington Books, 2001.
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